Day +47Graham had an infusion of Mesenchyaml Stem Cells (MSC's) today as part of a Phase III Clinical Trial for Steroid Refractory Acute Graft vs. Host Disease. It is a Double Blind Study which means neither the patient nor the Doctors know whether the MSC's or a Placebo are given. We were a bit concerned about this as the MSC's have shown very good results and we really didn't want the placebo!
Well, it turns out that the MSC's have a very distinctive smell and Graham's room was stunk out during the infusion! So much for the Double Blind Study - LOL!
He is much the same today but we have a very positive feeling that he will beat this thing. All the wonderful messages of support that have flooded in today have been very much appreciated and have given us both a boost.
I do have another favour to ask. If anyone has any United Airline Air Miles that they would like to donate to me so I can get my Mum back to Seattle to help out with the kids while Graham remains so unwell, I would be very grateful. Please drop me an email if you can help. A friend of ours here in Seattle (and Australian by marriage), Chris Tarling, has offered me 12,000 and we need 80,000 for a return flight.
Thanks again for your continuing support.
Sam
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2 comments:
i went through your blog.i had a similar experience and i survived.only thing is that we have to fight..
Dear Graham and Sam,
I 've just read about your last month experiences and very serious GVHD difficulties. So good the therapy with infliximab and mesenchymal stem cells (I'm very interested in this promissing new cellular therapy indeed) worked!! Almost 2 months post-TX, this means a very big step further in the good direction. Every day post-TX the chance for aGVHD becomes less. I know the next months still will be hard for you both and your family, but it looks like you're going to make it. Well done! Also to the Seattle hospital team!
Ann VDV (MD, Antwerp, Belgium)
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