Day +46
Graham is no better today and in fact the diarrhea is worse.
We are very grateful that we are here in Seattle as they have many more options available to us because of their research centre.
If the Refractory Acute GVHD can't be controlled, it will be fatal. He no longer has any sign of Leukaemia but unbelievably he has another battle to fight.
It is very unexpected that he would get Grade IV (the worst) GVHD let alone be resistant to the steroids. We are hopeful that this new treatment will help him turn the corner but we may not know for another couple of weeks.
He is not up to responding to your messages but he is checking his email so if you want to leave a message of support here or send him an email, I know he would be very grateful.
Much love and thanks.
Sam xx
www.adonorforgraham.com
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3 comments:
Graham,
Thinking about you and hoping today is a little better than yesterday. Here's a link to the post I wrote yesterday in my blog. You're in it. http://pj-plog.blogspot.com/2008/09/i-dedicate-this-race.html
I have had a lot of complications with my transplant, and every time I despaired, they came up with something else. Your doctors know what they're doing, and they have a deep "bag of tricks." So, don't despair, they'll figure it out! Hope you feel better soon.
Graham,
I have been thinking of you, and want you to kick this GVHD butt!! You can do it. You have showed us all on the LLB that you are a fighter! nicole
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