Wednesday, May 27, 2009

Graham faces another setback

Day +294

Sam here.

As I said in my most recent email update, we are busy with the kids, work, hospital visits and are getting our back lives on track. Since Feb this year, we managed to get away at Easter with the kids; Graham and I went to a friend's wedding in the Dandenongs and even got to stay overnight in a lovely B&B without the kids (thanks Marianne!). And we were planning on travelling to Wollongong to visit the new addition to our extended family, Baby Connor Macrae.

Unfortunately, this state of affairs has been upset and Graham was re-admitted to hospital a week ago as he was having trouble walking. They have done all sorts of tests and once again, he has the Doctors stumped.

MRI's of his spine show inflammation of the spinal cord (hence the lack of mobility) but no-one seems to be able to tell us what is causing it. As of today, they have ruled out any sort of infection or a relapse of leukaemia and think it may be our old friend Graft vs Host Disease. If this is the case, Graham will be one of only a handful of people to have ever suffered from GVHD of the Central Nervous System. He certainly likes to take the unconventional route.

They re-started him on high dose IV steroids last night and we hope to see some improvement within the next 72 hours.

I will keep you posted. Please keep Graham is your thoughts.

Sam xx